Rare disease
communication
In rare diseases, a launch takes place within a highly specialized ecosystem, involving key experts and a demanding regulatory framework.
Every action matters.
Launching a product for a rare disease requires a specific approach
Narrow market.
Clearly identified experts.
Structured care networks.
Influential associations.
Fast, interconnected decisions.
Improvisation is risky.
Structuring is decisive.
We focus on 4 key levers.
1. Preparing the ground
Awareness, reducing diagnostic delay, highlighting centers of expertise, etc.
Multichannel editorial initiatives and RARE à l’écoute media platform provide support for information and awareness challenges.
Objective: create a ready environment.
2. Identifying
key experts
70 to 80 experts truly structure the market.
Our KOL Mapping methodology identifies, qualifies, and prioritizes the experts who are truly influential in a given ecosystem.
3. Orchestrating
a coherent launch
Medical alignment, market access, communication.
Targeted advisory boards.
Expert editorial content.
Controlled digital activation.
Coordination with expert centers and healthcare networks.
A launch is not just a collection of tools.
It is an orchestration.
4. Securing
each step
Precision of messages.
Compliance with ANSM requirements.
Scientific consistency.
Securing each step helps prevent misalignment, delays, and protects credibility.
Deep knowledge of the rare disease environments is an integral part of our support.
Are you preparing to launch a product for a rare disease?
Awareness.
Pre-launch.
Launch.
Let’s discuss your key challenges and objectives.